March 19, 2017

Why am I here?

Like so many, I ask this question nearly daily, and the answer never seems to fully form itself. Am I a witness to the mayhem? Am I doing enough to quiet the fray? Am I a source of bother rather than help? Do I even have the necessary skills to do anything at all?

Today, I am choosing to put my best voice forward, for myself and the world. I sat at Mass this morning and listened hard to the readings. They were a call: a call to me to come to the forefront and speak, but more than that, a call to ACT.

Why am I here?

I am here of my own volition. There are times in my life when I thought "Time to go; I'm done."  There are times when I attempted to end my life. There are times when I wanted to end my life, but sought help instead. I am here because I CHOSE to be. I am seeing more and more now that my life is truly MY CHOICE. God gave me this life again and again, and he gave me the free will to choose to take it up again, even when my brain was encouraging me to refuse.

I have been given and chosen life, and now more than ever, people need to know that they are not alone, that they have choice, that they are called to live their own choices.

March 30th is World Bipolar Day.  In sight of this, I encourage everyone to do as I am doing, in educating themselves about Bipolar Disorder and ALL mental illness. Let's stop being afraid and start a conversation. Let's show people they are not alone in their journey.

Let's speak, act, and show the world why we are here: to love and help each other. 

What's Next?

Anyone who watches "West Wing" knows that one.... what's the next thing to be tackled?  Who needs to be taken on?  How do we claim triumph over the next set of obstacles?

These are the questions I ask myself in a hospital room in Concord, MA.  By now, I figure I've lost at least half my reading audience.  I figure this mostly because I write about THE SAME SHIT OVER AND OVER AGAIN.  But I can't help it.  This is the stuff of life that eludes me, and I will continue to write about it until it makes sense. I swear, I'm not trying to bore anyone.  But this is the course of my life.  If you're bored with the monotony of hospitalization after hospitalization, can you imagine how I feel?????

I ask "What's next?" because I (and a team of highly-trained specialists) have come to a conclusion: Laura is very good at being bipolar.  Laura is also very good at singing & acting in high-pressure, high-level musical productions.  What Laura is NOT very good at is doing both at the same time.  Since kicking bipolar disorder to the curb doesn't seem to be in the cards right now, I am taking a hiatus from performance.

The thought of this makes me nauseous. This is not "ok, go do this difficult thing without a net".  This is "you've been doing this difficult thing without a net since you were three years old, now just fucking stop". The idea of it brings on waves of depression, devastation, confusion.  I feel like someone just pulled a rug out from under me and told me there was a floor to walk on, so just go do it.  But the floor is covered in tacks & nails.  How the FUCK am I supposed to walk across this new floor?  I don't need a net, I don't need a map; I need feet of steel.

I know that there's nothing telling me not to sing EVER.  I'm allowed.  My throat works.  I remember the notes and words and rhythms.  I just can't do it in front of anybody for the foreseeable future.

AND I AM PISSED.

I have some thoughts.  I won't stay away from music.  I'll continue to take voice lessons.  I'll continue to work on my piano playing (when the titanium screws in my right hand don't give me too much trouble), and I am hell-bent on learning to play the guitar.

But this feeling of not singing feels like someone is trying to pull my heart out of my chest... through my right eye socket.  It's a ripping and tearing that I can't even get my brain to comprehend.  I need some steel plates in my head and heart to go with those feet.  I need to walk across that floor.  How the hell am I going to get across that floor?

What's next?

The Snake

When I was 4 years old, I went to pre-school at the YMCA in town. I wore paisley dresses and cried when Momma and Dad came to take me home. I wanted to stay there with the books and toys and children all day. 

I don't remember a whole lot about pre-school. I remember that we went for walks sometimes. We'd get in a big line and a jump rope would be strung among us with rings attached. Each one of us would grab a ring and hold on. Off we'd go, parading down the street attached to a plastic ring that was attached to a jump rope, connecting the lot of us like a short, stout, brightly-colored snake. 

We were a snake of criers and complainers and stumblers and runners and a few laughing teachers. We were a snake of lives just beginning. We were a snake who will forever shed its skin, with new teachers laughing, and new children holding on. 

I eventually let go, and some new pre-schooler took my place, and on, and on...

I am attached to a new jump rope now. The plastic ring I hold onto is the promise of help from a hospital. My fellow walkers stumble and cry and laugh and complain. We pray that the walk ends successfully, and that we can pass the rings of a jump rope onto a new class of those who seek help. 

We are a snake that is just as stout and short and brightly-colored. We have the potential of a group of pre-schoolers, off to make our lives anew. 

May Is Mental Health Awareness Month

"I feel like I can fly.  I feel like I could write until the end of time.  I feel like I am worth nothing.  I feel like cutting my skin is the only way to stay in the moment.  I feel like I am the best, worst, and only person on the face of the earth.  I feel like I do too much.  I feel like I will never do enough.  I feel like I am a role model to all those who seek the truth.  I feel like if you listen to me, you will only hear lies.  Don't listen.  Don't look at me.  Don't pay me any mind.  Please see the hurt.  Please see how I am lying.  Please see what I cannot tell you...ever.........."

The preceding is what goes through my mind in about 15 seconds on any given day.  This is the thought process of one person with Bipolar Disorder.  It usually happens about 100 times a day, a few times every hour.

Now add guilt.  Now add anxiety, nausea, sweating, shaking.  Now add the voices of 10 other people, all shouting at the same time. Now add visual hallucinations.  Now add screaming parents, spouses, siblings, aunts, uncles, cousins, friends, enemies.

Now try to work a job "just like everyone else".  Now try to clean your house, cook your meals, do your laundry, tend to your children, socialize with your friends. Now try to accomplish your dreams.

Seems a little difficult, doesn't it?

The next time someone says they're anxious about something, or they don't know if they can make it out to meet you for dinner, or they just don't know how they're going to get through the day, don't get angry or annoyed.  Don't sigh and think about what a drama queen they are.  Don't try to tell them that "it's all in their head", because IT IS ALL IN THEIR HEAD AT THE SAME TIME.....and it's not going anywhere. Just read this post.  Read it again and again until you start to see what it might be like for them.

And just love them. The only thing people with an illness want is a little love and support.  Just give them that much....and know you make all the difference.

Vignettes Part I

Hello again, gentle readers.  The following is the first of a few vignettes I wrote whilst at Emerson Hospital for another bout of med changes and "staying safe" this month.  All names have been changed to protect the innocent/guilty.

******************************************************************************

Carl throws a stress ball across the common room, hitting Blake in the shin.  They're talking about all the ways you can make alcohol and drugs from household items.  They have a case of what Bob would call "the spin drys".  Guys come in for 3-5 days because their wives, bosses or families beg them to get clean.  They dry out enough for the physical effects of their substance of choice to wear off, claim Jesus as their guide, and go right back out and use.  They have no intention of quitting, they just want to make their families happy, or keep the money coming in.  Blake has already managed to ingest Purell to try to stop his tremors and hallucinations.  In his mind, the ethanol in a hand sanitizer would be better than sobriety; all hand sanitizer has been confiscated from the unit.

Carl has taken to Blake and a few others who are all trying to dry out.  They laugh a little too loudly, proclaim their love of the Patriots, Red Sox, and Bruins a little too vehemently, and know everything.  All exclamations have at least one "fahhk" in some part of speech.  They are frightened little boys, wearing their fathers' jerseys and expressions, trying to be just as brave.  When their knowledgeable statements and information are questioned, they are almost always wrong, and they bluster through all the reasons why.  Their glasses weren't on, they thought you said the '77 Sox lineup, not '87, and that bitch nurse gave them the wrong med at the window this morning.  These are the guys who tell you who REALLY killed Kennedy, but can't remember their son's birth date.  Their tales come forth through gravelly, smoke-filled cords.   

I ask one of these gentlemen why he's so angry.  He says "I'm not angry at nothin'. Nothin' bothahs me anymoah." This is the same gentleman who thought Purell would make a good mixer.

It seems to me that I sometimes see these sober men for the last time on earth.  They are walking and talking ghosts, who won't ever be in this corporeal and sensitized state again.  Alcohol and opiates will numb their pain, desensitize the body, until they sleep forever.

"And now, the end is near...

And so I face the final curtain"

My Pa Rocky was a huge Sinatra fan.  He was such a big fan that we played "My Way" at his graveside on the day of his funeral. That song wasn't just one of his favorites; it was a mantra by which he lived his life.

Pa's life was not an easy one.  He came from a small town in Calabria, Italy. When he was 12, he and his father came to the United States, to work and raise enough money to bring his mother and two brothers over.  They lived in an apartment building in Boston, working hard, eventually bringing the rest of the family to America.  When Pa was 15, his father died.  Now he was the head of the family, supporting his mother and two young brothers.  School had been out of the question for a long time; now his life was about family and work.  Childhood was out of the question as well.

The years that followed were not easy either.  There was joy in his marriage and birth of his three children, but heartache in his divorce and strained family relationships.  He continued on his own path, not worrying about consequences, but being true to himself.  Even if no one liked his answers, they were his own truth, and he would not give up.

I find myself thinking about Pa a lot these days, these days that are shaky at best.  He did his utmost to make his own decisions on his own journey.  He was strong and stubborn (some would say to a fault).

I am making my own decisions now.  I have thought about giving up music.  Last night, I was scheduled to sing the Verdi "Requiem" at Tanglewood.  About an hour before the performance, I began to sob uncontrollably.  A dear friend and my manager both rubbed my back and comforted me and told me not to worry about singing, just to take care of myself.  My husband and mother said "Put tonight behind you.  It's one Verdi performance." But how many nights like these must I put behind me?  How many times can I start to lose my mind and let everyone pick me up off the ground, sobbing and wondering why I can't just get swallowed up by it?  How many people must I disappoint?  How many times will I prepare for a concert and then go through such a roller coaster in my brain that I question my own perception of reality?  In the span of one hour, I went from urges to cut myself, to determination to do the concert anyway (sobbing during silence be damned), to a simple and utter despair.  I don't know if I'm manic, hypomanic, anxious, depressed or psychotic.  I keep taking the pills, and taking the pills, and coping and coping and coping.

I want to try to slow the creeping unrest in my heart.  I can't stand to be around more than two or three people at a time.  Going out in public makes me fearful.  I worry that people I don't know will be angry, talk out of turn, or won't be quiet in a movie theater or at Mass.  These things make me feel actual fear!

And so I feel an end is near, and I face a final curtain of sorts. Is this the end of a music career? As I rehearsed the "Requiem" this week, I could not help but weep while I sang.  I am mourning the career that might have been.

I have had regrets, but I will have to do this my way.

But What If I Can't?

I am many things, one of which is a singer. I've sung for as long as I can remember, which for me is 2 or 3 years old.

My first musical memory is of my father standing me next to the piano and teaching me the song "Dites Moi" from South Pacific. Dad played, I sang, and an obsession was born. I can still hear the 4 bar piano intro in my head, V to I, in staccato chords. Dad would play the first note of the melody at the end of the 4th bar, so I knew where to start. But I didn't need the help. I couldn't HELP but know where the song started. It just made sense. It couldn't be anything else.

My love of music grew and grew, from a tiny spot in the center of my little body to the ends of the earth. Momma and I would sing songs from Disney movies and Broadway shows. I knew the words and melodies to every rock song Dad played with his band (I can still feel the foam microphone cover on my cheek as I sat at his keyboard during rehearsal breaks). My Fisher Price record player played everything from John Denver and the Muppets to the soundtrack of "Pollyanna" to Michael Jackson's "Thriller"-- a 4th birthday present from Dad. 

My family likes to joke that I started my "stage life" when I was negative 6 months old. Momma was pregnant with me during a run of "Trial by Jury", a G&S operetta. How could I help but love the theatre? I knew it before almost anything else!

Then when I was 6, I began piano lessons. I had been sitting at the piano "pretending to play" for so long that Momma and Dad knew this was the next logical step. My piano teacher was a little Italian nun with whom I had a love-hate relationship for the next 12 years. She was a part of the Irl Allison Guild; this is an organization for which you must play an "audition" every year in front of a judge, and receive an annual award commensurate with the material you present.  (Translation: If you don't screw up your songs too badly, you get a medal.) I loved these auditions because it was an adrenaline rush like no other.  You sat precariously on the edge of a piano bench, willing your hands to do what you'd worked so hard at all school year, in front of an audience. Then you got to do it AGAIN for a family recital in June..... now my obsession for music included the thrill of live performance.

And so it continued, with piano recitals, stage shows, choral concerts, band concerts, musicals, Pops concerts, Tanglewood concerts, Symphony concerts, more stage shows, TV tapings, movie soundtrack recordings, and on and on and on.

Last year, I came to a violent curve in my musical road.  I was onstage, and suddenly the feeling that I always cherished, that sense of "right" that music and performance gave me, was slipping away.  It turned to panic and rage.  My blood pressure skyrocketed, I broke out in a sweat, and I had to sit down in the middle of a performance.  My wonderful flying feeling from music was crashing and burning in front of my eyes. I tried to brush it off, as a simple flexing of the nerves, or a hypomanic episode.  But it keeps happening, and happening, and happening....

Since then, I have had a few other close calls and cancelled performances.  Two weeks ago, I was singing for a Marvin Hamlisch Tribute at Symphony Hall; we were doing all numbers from "A Chorus Line" with the original Cassie..... holy shit!  This is what young Broadway fans dream of!  How exciting!  But for me, it turned sour again.  I couldn't enjoy it.  I was so bogged down in sadness and anxiety that I had to actually keep myself from sobbing whilst another soloist sang "Sunshine, Lollipops, and Rainbows".  I COULDN'T SING FUCKING SHOWTUNES WITHOUT CRYING. As the 2nd evening of performance progressed, I made a decision.  That night, I would go home, get settled in for the night, and kill myself.  This was it.  Music held no beauty for me anymore.  I sang and felt nothing. What was the point? What will happen to me now?  My sublime comfort in all the chaos had been music, and standing on a stage singing as though the devil were chasing me. It was gone. And soon I would be.

I managed to remember my promise to Paulie and cling to life until the next morning when I got help from my therapist... into another hospital. Now, I can get through the day without wanting to die, most of the time.  I tried hard not to cry for that week in hospital, and the week thereafter when I thought about the fact that I may never be able to perform again. I can't find my fire. I can't find my love of this precious gift that was given to me when I was 2 years old, standing next to Dad at the spinet in the living room, right along the stairs.

I listen to music and sing along softly to the radio. I sing jazz as fiercely as I want while doing the dishes.  I can't practice.  I'm trying hard to keep my chin up, knowing I do have some musical obligations.  My conductor at the Hall is being gracious and wonderful and letting me try a few weekends of Tanglewood this summer. I am determined to find my sublime comfort again, in the memories of a toddler singing in French with her father......

.....but what if I can't?...........

Life on the Inside: or, How to Take a Shower in Fifteen Minutes or Less

When one is on a psych ward, there are at least 2 constants: crazy people, and "checks".  Checks are the constant "checking on" every patient throughout their day.  One staff member per hour walks about with a clipboard, making sure that everyone is safe and accounted for EVERY 15 MINUTES.  They bang on every closed door, including the bathrooms.  A running joke amongst "serial patients" is that if you get REALLY good, you can get into a bathroom, shower, change, and leave before someone comes banging down the bathroom door, insisting that you scream out your first name, last initial over the sound of running water whilst you scrub your hair.  It's like a guillotine that comes out of nowhere, blasting your last dignity; a hot shower where, for a short time, you can forget that you are so crazy you live in a locked space.

Life on an inpatient unit is a real lesson in diversity and similarity.  It's a study in opposites, and how they co-exist.  In this particular case, everyone is here because "coping on the outside" has become impossible.  We are a danger to ourselves and others.  How we handle this ranges from sleeping 20 hour a day to running around the halls in socks at all hours of the day and night, making signs for "those that are not aware of how things work" and refusing all medications.

We squeeze stress balls and wrap ourselves in hospital blankets.  We talk to each other about the "good old days", when we used, drank, cut ourselves.  We compare scars and "The Lists"; lists of the hospitals we've been to, lists of the restraints we've been subjected to, lists of the drugs the docs have "tried out" on us.  We eat far too much, sharing candy and treats visitors have brought us.  We are from the city, country, suburbs.  We live in mansions, ranches, split levels, apartments, group homes, and cars; mental illness is the Almighty Equalizer.

I have watched as a young man cried into the shoulder of an elderly woman, finally accepting his addiction.  I have been the recipient of a piece of candy and a smile from a Hells Angel who loved classical music as much as I did.  We are a beautiful and highly dysfunctional family.  We scream and yell and laugh and cry and try to be "normal".

Today I am reeling; mania has taken over my life in a very real way.  I am inpatient now, trying to mix meds and coping skills into a kind of "cocktail" that might work. 

Mania has made me angry, violent, and frustrated.  My mood is labile (Holy understatement, Batman!) and I find myself getting into arguments with friends and family for no "good" reason. I cannot sit in a group for more than 15 minutes without having to leave.  I have a nasty twitch in my hands if I try to stay any longer.  I find myself pacing the halls, biting my nails so I don't scream at nothing and no one.  I shake violently just trying to keep my brain from leaking out my ears.  Sitting in a group starts to give me a glimpse into the life of Bruce Banner.

Up until yesterday, I would have said that I continue to have great faith in the medical profession to get me through.  Now my feelings are mixed.  While speaking with a doc on Tuesday, we discussed the medications I have taken in the past.  One of them is Depakote; I took it from about 1998-2001.  The doc immediately interjected "Well, I would never put you on that again; it obviously already did its worst." When I asked what she meant she told me that Depakote has been shown to cause PCOS (polycystic ovarian syndrome).  This is the condition that prevents me from ever having children.  Now the truth comes forward; the very medication that was supposed to "help" me ripped away one of my biggest dreams: motherhood.  The Brahms "Lullaby" plays over the loudspeakers here as I write this, indicating a baby has just been born.  Everytime it plays a bit of my heart bleeds faster. 

And now here I sit, at the end of a little twin hospital bed, writing on a tray table, begging God and all the saints and angels to come and bear a little grief and mania with me.  Maybe if they do, I can finish this latest of life's showers in less than 15 minutes.

Ending a cycle of silence

This day feels like it was a long time in coming.  It's an impossible thing to write; I almost don't want to look at the words as I type them.  I may even be looking down and typing by feel right now because I can't believe that I'm doing this, but I am ashamed.  I am ashamed that it has taken this long for me to publicly admit something that should not be shaming.

I am a rape survivor.

Good Christ, I actually looked at the screen while I typed that, and now I'm nauseous.

For some of you, this post is over.  You'll click away now, with a comment about how needy that poor Laura is; she had to write about "that kind of thing" on her blog.  What a terrible thing, and what a messed-up girl she must be for admitting something so publicly.  Maybe you're right.

But I'm pissed at myself because it took me so long to talk about this.  I am ashamed of the fact that I could not, until now, say those few words above without feeling like I was going to vomit, and that everyone I knew and loved would hate and abandon me.  So I just never said them.... but the time has come for this cycle of silence to END.

The truth is I WAS raped.  And then I did something completely STUPID.... I blamed myself.  I was the idiot who went to that place.  I was the moron who dressed in a "cute" way that night, in hopes of meeting a nice guy.  I was the absolute cretin who didn't fight.  I was the shamed individual who said "No one will believe me; it's my own cross to bear."  What a Catholic!!!!  I was raped and then I FELT GUILTY ABOUT IT.  I went ahead and did every single thing one is told NOT to do in a situation of violence.  I kept my mouth shut.

It took me almost 4 years to admit to anyone that it had even happened.  At one of my ER visits, a nurse asked if I had a history of sexual violence, and I found myself saying "Yes."  She looked up from her clipboard, her eyes asking for more information.  I then blurted out "I was raped when I was 20."  I couldn't believe my own ears.  I had kept it a secret for so long, it didn't even feel like I was the one speaking.  A tailspin of self-doubt and loathing promptly began.  I must have been wrong.  Maybe I made it up?  I'll just keep it to myself; I'm imagining things.  And then I found myself telling Paulie... and my parents... and a few other family members.  Whoa.... that shit really happened.  But I wasn't going ANY further than that.  Because people don't talk about that stuff.  It's off-putting and makes one look like they just want sympathy, right?

Now, 12 years after the incident (the rape, Laura, call things for what they are!!!), I find myself more sensitive to blatant justifications, jokes, or a generally flippant attitude toward rape and sexual abuse.  The past few months have been particularly painful, with no real reason in sight.... and last Sunday night, I lost it.

Audra MacDonald won a Tony award for her role as Bess in "The Gerschwins' Porgy & Bess".  She took the stage, and began to give a lovely heart-felt speech about how grateful she was to the world of theater.  She thanked her leading man, Norm Lewis....and then said that she enjoyed being raped every night by her "Crown", Philip Boykin.

Did she truly mean that she enjoyed even a pantomimed sexual assault?  Absolutely not.  Did she make a bit of a mistake in putting things quite that way?  Yes.  Was it her fault?  No, it was a whacky way to say "thank you" to a fellow cast member because she won a huge award and was excited. But I was livid, and everyone in the room with me knew it.  I ranted and raved about her behavior, and blathered furiously on Facebook.

I calmed down and asked myself "Why does this particular transgression bother me so much?"  Later that night, I started to get my answer: "This will continue to bother you until you get serious about it.  You need to take a stand, Laura.  Be an adult and do the right thing."

And so I think it's time.  I think it's time that I join the ranks of those who don't "take it" or "hush it up" anymore.  It's time that I do the right thing by every person who has been sexually assaulted, and speak my mind when I don't like something I hear, become publicly involved in sexual injustice and abuse.  In short, I will use my big mouth for something good.

If even one person comes across this odd, disjointed blog post, and decides to report a rape or assault, it's all worth it.

I'm through with silence.